Digital technologies are increasingly ubiquitous in daily lives. For people with chronic health care needs, digital tools like telehealth (phone/video visits), MyChart, remote monitoring, wearables/apps, and algorithm‐based decision support are increasingly relevant. While digital tools hold great promise for improving convenience and quality of care for some patients, there are ongoing concerns about equity with regard to digital accessibility, quality of care, and the potential for inadvertently worsening existing disparities in care.
By eliciting multi-stakeholder engagement to understand how digital tools affect patients with chronic conditions and their care experiences, we intend to lay the groundwork for future measurement of patient-centered outcomes in both healthcare and research. We specifically aimed to identify a list of patient-centered outcomes that should be measured when using digital strategies, methods for outcome measurement, and a roadmap for implementing measures in health care systems and future comparative effectiveness research (CER) studies.

To access the executive summary, click here

For the full engagement report, click here