About

Publications While At HealthPartners

selected publications

Journal Article

End-of-life measures in Huntington disease: HDQLIFE meaning and purpose, concern with death and dying, and end of life planning. 

Journal of Neurology. 2019

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD). 

Quality of Life Research. 2016

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system). 

Quality of Life Research. 2016

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full name

N. R. Downing

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Co-author network

Map of science