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Publications While At HealthPartners

selected publications

Journal Article

End-of-life measures in Huntington disease: HDQLIFE meaning and purpose, concern with death and dying, and end of life planning. 

Journal of Neurology. 2019

Agreement between clinician-rated versus patient-reported outcomes in Huntington disease. 

Journal of Neurology. 2018

Relationships among apathy, health-related quality of life, and function in Huntington's disease. 

Journal of Neuropsychiatry and Clinical Neurosciences. 2018

Reliability and validity of the HD-PRO-TriadTM, a health-related quality of life measure designed to assess the symptom triad of Huntington's disease

2017

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD). 

Quality of Life Research. 2016

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system). 

Quality of Life Research. 2016

The impact of oculomotor functioning on neuropsychological performance in Huntington disease. 

Journal of Clinical and Experimental Neuropsychology. 2016

Motor onset and diagnosis in Huntington disease using the diagnostic confidence level. 

Journal of Neurology. 2015

Multivariate clustering of progression profiles reveals different depression patterns in prodromal Huntington disease. 

Neuropsychology. 2015

Performance of the 12-item WHODAS 2.0 in prodromal Huntington disease. 

European Journal of Human Genetics. 2015

Clinical and biomarker changes in premanifest Huntington disease show trial feasibility: a decade of the PREDICT-HD Study. 

Frontiers in Aging Neuroscience. 2014

Managing juvenile Huntington's disease. 

Neurodegenerative Disease Management. 2013

CAG repeat expansion in Huntington disease determines age at onset in a fully dominant fashion. 

Neurology. 2012

Smaller intracranial volume in prodromal Huntington's disease: evidence for abnormal neurodevelopment. 

Brain. 2011

Challenges assessing clinical endpoints in early Huntington disease. 

Movement Disorders. 2010

Striatal and white matter predictors of estimated diagnosis for Huntington disease. 

Brain Research Bulletin. 2010

Beyond disgust: impaired recognition of negative emotions prior to diagnosis in Huntington's disease. 

Brain. 2007

Verbal episodic memory declines prior to diagnosis in Huntington's disease. 

Neuropsychologia. 2007

Genome-wide significance for a modifier of age at neurological onset in Huntington's disease at 6q23-24: the HD MAPS study. 

BMC Medical Genetics. 2006

A genome scan for modifiers of age at onset in Huntington disease: The HD MAPS study. 

American Journal of Human Genetics. 2003

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J. S. Paulsen

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