Myositis support for members

Symptoms of myositis vary. Chronic inflammation that causes your muscles to feel weak is common. Other symptoms may include:

Your doctor will likely order a series of tests to diagnose you correctly and rule out other conditions. These tests may include:

• Blood tests – Your blood may be analyzed to see if you have elevated enzyme levels in your muscles. This may indicate damage. Your blood may also be tested for antibodies typical of myositis.
• Magnetic resonance imaging (MRI) – MRIs are used to look at large muscle areas to determine if there’s inflammation. If there is, it can be a sign of myositis.
• Electromyography (EMG) – Your doctor will test different muscle groups while you’re at rest and in motion. This can help your doctor determine where and how much myositis may be affecting you.
• Muscle biopsy – A small piece of muscle is tested for abnormalities like inflammation, certain proteins and enzymes, and damage.

Your doctor will also likely ask about your medical history, your symptoms, and how your muscles feel during certain motions or activities.

There isn’t a treatment specifically for myositis. But active management of the condition can help you enjoy life to the fullest. A common goal of myositis treatment is remission. That means little or no muscle inflammation.

Symptom treatment varies based on the type of myositis you have, your current health and medical conditions, and other factors. Your treatment may include:

• Prescription medicines – Steroids, antibiotics and other medicines can help reduce inflammation. They may also improve muscle strength.
• Regular exercise – Regular, moderate-intensity exercise can help reduce inflammation and fatigue, increase stamina, and build muscle. Make sure you check with your doctor before beginning any exercise routine.
• Physical therapy – Physical therapists can help design stretches and workout regimens. Your doctor may suggest physical therapy, depending on your symptoms.
• Home therapies – In consultation with your doctor, things like yoga and acupuncture may help relieve symptoms. In addition, a healthy, balanced diet – particularly one that’s anti-inflammatory – can go a long way. Gentle cold and heat therapy and massage are both good for your muscles, too. And make sure to rest whenever needed.
• Using a cane, walker or other assistive device – You might find it easier to walk or get around with an assistive device. Your doctor or physical therapist can offer suggestions about what might work best for you.