Scleroderma support for members

The most common symptoms of scleroderma are hard, thick or tight skin on the fingers. Skin may also be waxy, dry or itchy. Other scleroderma symptoms include:

Getting a scleroderma diagnosis may take time and require several tests. This is because scleroderma symptoms are similar to those of some other conditions.

Tests for scleroderma may include:

• Skin biopsies – If your skin is hard or thickened, your doctor will examine a sample under a microscope.
• Blood tests – Blood analysis can help determine how your immune system is working and if it’s overactive.
• Computed tomography (CT) scan – This imaging test uses X-rays to look for scar tissue in the body.
• Electrocardiogram (EKG or ECG) – Electrocardiograms record electric signals in the heart to monitor heart health and test for problems.
• Endoscopy – If you’re experiencing gastrointestinal (GI) issues, an endoscopy to look at your throat and stomach may help determine the cause.
• Pulmonary function tests – If you’re having lung or breathing issues, these tests see how your respiratory system is performing.

Once you’ve received a scleroderma diagnosis, treatment usually focuses on controlling symptoms. Your doctor and care team will work with you to determine the best course of care. Treatment options typically include:

• Prescription medicines – Depending on the type of scleroderma you have and your symptoms, there’s a variety of medicines that can help. For example, if you’re experiencing Raynaud’s phenomenon, your doctor may prescribe medicines that help keep your blood vessels open. Your doctor may also prescribe immunosuppressants, medicines for digestive symptoms, pain relievers, antihistamines and more.
• Skin care – Moisturizers and specially prescribed creams can help soothe dry or itchy skin. It’s also important to be gentle when cleaning your skin: Use a mild, fragrance-free cleanser and warm water.
• Lifestyle changes – For skin symptoms, regularly use sunscreen, stay out of the sun and apply oil-based moisturizers. For stomach symptoms, eat small and frequent meals, avoid spicy foods, and stay upright after eating. And for Raynaud’s phenomenon or joint problems, quit smoking, dress warmly and exercise.
• Physical therapy – Gentle stretching, massage and other physical therapies can help with pain management and expanding range of motion. It may also help increase your strength, improve circulation and increase blood flow to your skin. Your doctor may suggest physical therapy, depending on your symptoms.